|
Project Name
|
Organization
|
Description
|
Principal Investigator(s)
|
| Action Tremor and Dementia in Male Carries of Fragile X |
UC DAVIS MIND/ UCHSC |
To define the clinical features of a newly identified, progressive neurologic disorder consisting of intention tremor, ataxia, and dementia, with generalized brain atrophy and inclusion bodies, among older men with the fragile X premutation. |
Randi Hagerman
|
| ATN Quality of Life Sub-Study Oregon Health & Science University |
ATN_OHSU |
Autism Treatment Network - Quality of Life Sub-Study: Oregon Health & Science University (Portland, OR) |
Raphael Bernier
|
| ATN Quality of Life Sub-Study University of Washington |
ATN_Washington |
Autism Treatment Network - Quality of Life Sub-Study: University of Washington (Seattle, WA) |
Raphael Bernier
Alystra Hill
Felice Orlich
|
| ATN Registry Arkansas Children's Hospital Research Institute |
ATN_Arkansas |
Autism Treatment Network - Registry: Arkansas Children's Hospital Research Institute (Little Rock, AR); Jill James, PhD (PI/Site Director) |
Nancy Lowery
|
| ATN Registry Baylor College of Medicine |
ATN_Baylor |
Autism Treatment Network - Registry: Baylor College of Medicine (Houston, TX); Diane Treadwell-Deering, MD (PI/Site Director) |
Aryn Knight
Hannah Meddaugh
Diane Treadwell-Deering
|
| ATN Registry Bloorview / Hospital for Sick Children / Surrey Place Center (Toronto) |
ATN_Bloorview |
Autism Treatment Network - Registry: Bloorview / Hospital for Sick Children / Surrey Place Center (Toronto, ON, Canada); Wendy Roberts, MD (PI/Site Director) |
Salina Eldon
Noel Grzetic
Lisa Kanigsberg
Johanna Lake
Alvin Loh
Wendy Roberts
|
| ATN Registry Cincinnati Children's Hospital Medical Center |
ATN_Cincinnati |
Autism Treatment Network - Registry: Cincinnati Children's Hospital Medical Center (Cincinnati, OH); Patty Manning-Courtney, MD (PI/Site Director) |
Terry Mitchell
Cynthia Molloy
|
| ATN Registry Columbia University |
ATN_Columbia |
Autism Treatment Network - Registry: Columbia University (New York, NY); Agnes Witaker, MD (PI/Site Director) |
Abigail Batchelder
Erica Kovacs
Erica Kovacs
Agnes Whitaker
|
| ATN Registry Kaiser Permanente Northern California |
ATN_Kaiser |
Autism Treatment Network - Registry: Kaiser Permanente Northern California (Bay Area, Northern CA); Lisa Croen, PhD (PI/Site Director) |
Tiffany Wong
|
| ATN Registry Kennedy Krieger Institute |
ATN_KKI |
Autism Treatment Network - Registry: Kennedy Krieger Institute (Baltimore, MD); Rebecca Landa, PhD (PI/Site Director) |
Zachary Nevin
Katie Voss
Steven Woods
|
| ATN Registry LADDERS / Mass General Hospital |
ATN_LADDERS |
Autism Treatment Network - Registry: LADDERS / Mass General Hospital (Boston, MA); Margaret Bauman, MD (PI/Site Director) |
Joyce Suh
|
| ATN Registry Oregon Health & Science University |
ATN_OHSU |
Autism Treatment Network - Registry: Oregon Health & Science University (Portland, OR); Robert Steiner, MD (PI/Site Director) |
Karen Grant
Alystra Hill
Erin Moran
|
| ATN Registry University of Colorado |
ATN_Colorado |
Autism Treatment Network - Registry: University of Colorado (Aurora, CO); Corry Robinson, PhD, RN (PI/Site Director) |
Harriet Austin
|
| ATN Registry University of Missouri - Columbia |
ATN_Missouri |
Autism Treatment Network - Registry: University of Missouri - Columbia (Columbia, MO); Judith Miles, MD, PhD (PI/Site Director) |
Krista Hughes
|
| ATN Registry University of Pittsburgh |
ATN_Pittsburgh |
Autism Treatment Network - Registry: University of Pittsburgh (Pittsburgh, PA); Nancy Minshew, MD (PI/Site Director) |
Sarah McAuliffe-Bellin
Kelley Sacco
|
| ATN Registry University of Rochester |
ATN_Rochester |
Autism Treatment Network - Registry: University of Rochester (Rochester, NY); Susan L. Hyman, MD (PI/Site Director) |
Alison Diehl
|
| ATN Registry University of Washington |
ATN_Washington |
Autism Treatment Network - Registry: University of Washington (Seattle, WA); Bryan King, MD (PI/Site Director) |
Raphael Bernier
|
| ATN Registry Vanderbilt University |
ATN_Vanderbilt |
Autism Treatment Network - Registry: Vanderbilt University (Nashville, TN); Wendy Stone, PhD (PI/Site Director) |
Karen Adkins
Dana Cristina
|
| Autism Genetic Resource Exchange |
Autism Speaks |
AGRE provides biomaterials and an unprecedented resource of phenotypic and genotypic data available for analysis by members of the scientific community. |
Dan Geschwind
|
| Autism Phenome Project |
MIND |
Autism Phenome Project |
Lou Ann Barnett
|
| Autism Spectrum Disorder with Comorbidity |
UCDAVIS M.I.N.D. INSTITUTE |
We hope to learn more about brain development in children with ASD and its association with serious emotional disorders. Participants complete an MRI session, diagnostic interviews, and psychological testing over several days. |
Beth Goodlin-Jones
|
| Autism Tissue Program |
The Autism Tissue Program |
The Autism Tissue Program provides approved scientists access to the most fundemental, rare, precious and necessary resource, human brain tissue. It is a joint effort of the ASA Foundation, NAAR and the MIND Institute at UC Davis. |
Jane Pickett
|
| Center for Autism and Develpomental Disabilities Research and Epidemiology Site 1 |
CDC |
CADDRE |
Jim Siebert
|
| Center for Disease Control |
CDC |
Center for Disease Control |
Andrew Autry
RACHEL AVCHEN
|
| Childhood Autism Risks from Genetics and the Env. |
U.C. Davis Medical Center |
A study to understand the causes of autism and other developmental disorders |
Lisa Croen, PhD
Robin Hansen, MD
Irva Hertz-Picciotto, PhD
Keith Jose
Paul Law
Marian Sigman, PhD
|
| Children's Hospital of Philadelphia Regional Autism Center Project |
CHOP |
Children's Hospital of Philadelphia Regional Autism Center has collected information on autistic families and would like to database this information in ISAAC |
Megan Carolan
Susan Levy
Timothy Roberts
|
| Citalopram for Children with Autism and Repetitive Behavior |
UCLA Neuropsychiatric Inst. |
Children with autism spectrum disorder and repetitive behaviors will be treated with citalopram in a double-blind, placebo controlled, clinical trial. |
James McCracken, MD
|
| Course and Validity of Regression in Autism |
CPEA - Mind Institute |
This project examines the measurement, predictors, course, causes, and external validity of regression. |
Sally Ozonoff, Ph.D.
Isaac Pessah, Ph.D.
Sally J. Rogers, Ph.D.
|
| Diuli Daycare project Longitudinal Study of Autistic Children |
Diuli Daycare Project, India |
This project is following children longitudinally with the Clinical Autism Rating Scale and the Autism Treatment Evaluation Checklist . |
Nadita de Souza
|
| Early Childhood Partial Hospital Program |
UCLA CART |
UCLA CART Program is a short-term integrated day treatment program for children with autism, developmental disabilities and behavior disorders. |
Jeanette Papp
|
| Epidemiologic Research on Autism in China |
Johns Hopkins University |
Planning project and pilot prevalence study. This study is being conducted by the Johns Hopkins Center for Autism and Developmental Disabilities Epidemiology (CADDE) and Peking University. |
Craig Newschaffer
|
| Genotype-Phenotype Relationships in Fragile X Families |
MIND Institute |
The study focuses on identifying areas of specific deficits by relating the deficits to molecular findings. Approximately 20 families will be assessed per year. |
Randi Hagerman
|
| Genotype-Phenotype Relationships in Gragile X Families -- Australia |
La Trobe University, Australia |
The study focuses on identifying areas of specific deficits by relating the deficits to molecular findings. Approximately 20 families will be assessed per year. |
Randi Hagerman
|
| Imitation and Regression in Early Autism |
UC DAVIS MIND |
To learn more about the causes, early warning signs, and long-term outcomes of children who experience a regression. To examine how young children learn to imitate and how imitation affects language and social development. |
Sally Ozonoff, Ph.D.
|
| Imitation and Social Responsivity in Autism |
CPEA - Mind Institute |
The proposed study will examine the performance of 20 2-3 year olds at two time points using a series of experimental manipulations to explore two aspects of imitation: the apprenticeship function, and relationships with social responsivity. |
Sally J. Rogers, Ph.D.
|
| Infants at Risk of Autism: A Longitudinal Study |
UCLA CART |
This study tracks the early development of younger siblings of children with autism, children with other developmental delays, and children with typical development. |
Marian Sigman, PhD
|
| Magnetic Resonance Imaging in Austism Spectrum Disorder |
M.I.N.D. Institute |
|
Sufen Chiu
Beth Goodlin-Jones
|
| National Institutes of Health |
National Institutes of Health |
A Clinical and Immunological Investigation of
Regression in Autism |
Sue Swedo
Audrey Thurm
|
| Neurological Phenotype in FMR1 Premutation Carriers (Neuro Pheno Study) |
UC DAVIS M.I.N.D. Institute |
The purpose of this study is to better understand the neurological findings that occur in some older individuals who carry the premutation of fragile X syndrome. |
Randi Hagerman
|
| Parent-Assisted Friendship Training for Children with Autism (CART Project 5) |
UCLA CART |
The goal is to train parents of children with autism to promote and support friendship between the autistic child and others. |
Fred Frankel
|
| Peer-Related School Intervention in Autism |
UCLA CART |
The goal of the proposed project is to examine children with autism's social inclusion in the classroom as a result of two different targeted peer interventions, a combined intervention condition, or no treatment. |
Connie Kasari
|
| Pilot Project to Assess Web-Based Family Recruitment for Autism Genetics Studies |
Kennedy Krieger Institute |
The overall goal of this project is to demonstrate that large-scale DNA collection is feasible and cost-effective. |
Paul Law
|
| Psychophysiology of Emotion in Neurodevelopmental Disorders |
U.C. Davis Medical Center |
This study examines physiological responses to social and emotional stimuli in individuals with fragile X syndrome and autistic spectrum disorders. |
David Hessl
|
| Speech and Language Loci in Autism |
UCLA CART |
This study is aimed at examining language development and its relationship to the genetics of autism. |
Dan Geschwind
|
| SSRI Treatment of Repetitive Behaviors in Children with Pervasive Disorder |
UCLA CART |
The goal of the proposed treatment study is to provide a rigorous test of the efficacy and safety of an SSRI, citalopram, in the treatment of repetitive behaviors seen in a broad group of children and adolescents with a PDD diagnosis. |
James McCracken, MD
|
| Stanford California Autism Twin Study |
Stanford and AGRE |
|
Sue Cleveland
Joachim Hallmayer
Jennifer Phillips
|
| SurroMed Biomarker Study |
M.I.N.D. Institute UC-Davis |
A pilot comprehensive phenotypic analysis and biological marker of autism discovery research study. |
David Amaral
Blythe Corbett
Beth Goodlin-Jones
|
| UC-DAVIS-Seattle Fragile X Research Centers (Seattle) |
UC Davis/Univ. of Washington |
We hope to learn more about the Fragile X syndrome mutation. Specifically, we want to understand how the severity of symptoms correlates to the severity of the mutation. We also want to learn more about how the body responds to emotions. |
Randi Hagerman
|
| University of Pennsylvania Children's Health And Progress Study |
UPENN |
CHAPS follows up on children with low birthweight to see if there is an increase in spectrum disorders. |
Agnes Whitaker
|
| Validity of Diagnostic Measures for Autistic Spectrum |
University of Michigan |
The Validity of Diagnostic Measures for Autistic Spectrum will analyze existing data sets as well as data from ongoing data collection for the ADIR, ADOS and SCQ. |
Cathy Lord
|
